Cinnamon Bloss / UC San Diego
November 17, 2017
The divide between health-related big data capabilities and individual privacy controls and protections is widening. Highly granular personal health data (e.g., from wearable sensors or personal genome sequencing), hold promise for improving health. Ironically, however, while the rhetoric around this promise focuses on empowerment of people to take greater control over their own health, we have a big data ecosystem in which people may have little control over the flow of their personal health information, and thus their privacy. Moreover, despite the widely recognized importance of privacy, there is little consensus among scholars and stakeholders as to what privacy actually is or means. With the goal of understanding individual conceptualizations of privacy with respect to personal health data technologies, we conducted focus groups, interviews, and surveys with individuals sampled from a diverse set of patient and demographic groups. This presentation will highlight findings from this work.
About Cinnamon Bloss, Ph.D.
Cinnamon Bloss, Ph.D. is Associate Professor in the Departments of Psychiatry and Family Medicine and Public Health, Division of Health Policy at the University of California, San Diego. She is an adjunct Policy Analyst at the J. Craig Venter Institute and a California-licensed clinical psychologist. Dr. Bloss’s career has been focused on transdisciplinary research. She has managed a number of multidisciplinary research teams in the context of large-scale projects in areas such as direct-to-consumer genomics, genome sequencing in diagnostic odyssey cases, privacy and big data, and genome editing for control of infectious disease. She manages an active independent research laboratory that includes several postdoctoral fellows, graduate students, undergraduates, and research staff.